Becoming an advocate for Crohn’s, one player at a time

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The way that my advocacy life started actually happened by chance This was...

by Erron Maxey October 28

Nurse and patient: Seeing patient care from both sides

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As a patient, and as a nurse, the past year has made it extremely...

by Melissa Crawford October 1

Fueling hope and healing through family-centered advocacy after pediatric brain cancer

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Despite having spent nearly a decade of my career in the business side of...

by Erica Johansen September 30

Doing more: Patient advocacy and support in a Pandemic

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I am very active patient partner both locally and nationally I am a family...

by Desiree Collins Bradley September 29

Cheerleader of Hope

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I was living my dream I trained and performed cheerleading, dance and...

by Barby Ingle September 17

Introducing the 2020 Patient Experience Symposium #WTFix Patient Scholarship Winners

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We are pleased to introduce this year’s patient scholarship winners for...

by Anna Greene September 16

Science for One: The Value of an Informed Patient

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In November of 1993, I fell ill with mysterious symptoms Usually bubbly...

by Grayson Schultz September 2

Improving Health Care with Patient Voices: A Summary of the #WTFix Virtual Patient Panel

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We recently hosted our first-ever #WTFix virtual patient panel – and we...

by Anna Greene August 24

#WTFix Virtual Patient Panel: Sharing Personal Experiences to Help Improve Health Care

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No one could have predicted what the year 2020 would bring – upheaval in...

by Anna Greene July 14

Now Accepting Scholarship Applications to Attend the Patient Experience Symposium Online

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Last year, as part of our efforts to amplify the patient voice among...

by Anna Greene July 13

Tools for Patients During COVID-19: The PEN-Powered Activity Guide

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With the introduction of physical distancing and shelter in place due to...

by Kara Rayburn June 10

Connecting through community: Building a support system to meet your needs

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I remember the day that my life changed forever My parents sat me down at...

by Seth Rotberg May 27