Blog

People sharing stories of grit, change and hope

Becoming an advocate for Crohn’s, one player at a time


The way that my advocacy life started actually happened by chance This was...

by Erron Maxey October 28

Nurse and patient: Seeing patient care from both sides


As a patient, and as a nurse, the past year has made it extremely...

by Melissa Crawford October 1

Fueling hope and healing through family-centered advocacy after pediatric brain cancer


Despite having spent nearly a decade of my career in the business side of...

by Erica Johansen September 30

Doing more: Patient advocacy and support in a Pandemic


I am very active patient partner both locally and nationally I am a family...

by Desiree Collins Bradley September 29

Cheerleader of Hope


I was living my dream I trained and performed cheerleading, dance and...

by Barby Ingle September 17

Introducing the 2020 Patient Experience Symposium #WTFix Patient Scholarship Winners


We are pleased to introduce this year’s patient scholarship winners for...

by Anna Greene September 16

Science for One: The Value of an Informed Patient


In November of 1993, I fell ill with mysterious symptoms Usually bubbly...

by Grayson Schultz September 2

Improving Health Care with Patient Voices: A Summary of the #WTFix Virtual Patient Panel


We recently hosted our first-ever #WTFix virtual patient panel – and we...

by Anna Greene August 24

#WTFix Virtual Patient Panel: Sharing Personal Experiences to Help Improve Health Care


No one could have predicted what the year 2020 would bring – upheaval in...

by Anna Greene July 14

Now Accepting Scholarship Applications to Attend the Patient Experience Symposium Online


Last year, as part of our efforts to amplify the patient voice among...

by Anna Greene July 13

Tools for Patients During COVID-19: The PEN-Powered Activity Guide


With the introduction of physical distancing and shelter in place due to...

by Kara Rayburn June 10

Connecting through community: Building a support system to meet your needs


I remember the day that my life changed forever My parents sat me down at...

by Seth Rotberg May 27