#WTFix 2018 is Patients Included!
We in health care all know that there aren’t enough patients and regular people attending conferences, giving input and helping to shape the conversation. When we created What’s the Fix? it was extremely important to us to be recognized as patient friendly and as an event whose main focus in on people. Not only did we want patients at our event, but we wanted the community to help us plan it and pull it off.
Patients Included (patientsincluded.org) is an organization and an accreditation that stands for exactly what we do, building events focused on patients, informed by patients and accessible to all patients (and people). We are beyond excited that in year two, we are able to meet the PI criteria. We worked hard for the accreditation, not for the certificate (not even sure there is one!) but because it’s the right thing to do. We can’t imagine how other health care events can be successful when they aren’t involving those that they are meant to benefit.
Please take a look at the criteria and the responses below. We are always open to any conversations or thoughts. Feel free to email us through the contact us link, or reach out on twitter to us @healthsparq or with the hashtag, #WTFix.
How do we meet the criteria?
Clause 1: Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers.
Tweet chat hosts, last year’s speakers, influencers and patient organizations are all contributing to the conference’s content and programming. We have a patient advisory council that is helping define the online experience. And almost all of our speakers are patients.
Clause 2: Patients or caregivers with experience of the issues addressed by the event participate in its delivery, and appear in its physical audience.
Almost all speakers are patients or caregivers. There is no charge to attend in person or online so patients are invited in any way they’d like to join. Patients and patient advocacy groups are actively invited. We stream the entire conference live anywhere in the world.
Clause 3: Travel and accommodation expenses for patients or carers participating in the advertised programme are paid in full, in advance. Scholarships are provided by the conference organisers to allow patients or carers affected by the relevant issues to attend as delegates.
Travel (airfare, hotel) for patient speakers is booked and paid for by HealthSparq. All food, airport transfers and incidentals are paid for by a gift card delivered to the patient/speaker at least one week prior to the event. Any patient can attend the event for free in person or online.
Clause 4: The disability requirements of participants are accommodated. All applicable sessions, breakouts, ancillary meetings, and other programme elements are open to patient delegates.
Dell Medical School is ADA compliant in all buildings where What’s the Fix? will take place.
Clause 5: Access for virtual participants is facilitated, with free streaming video provided online wherever possible.
What’s the Fix? will be streamed online for free in its entirety as it was in 2017. A digital advisory council of patients is helping to define and maximize the online experience for all virtual attendees.