Blog

People sharing stories of grit, change and hope

Becoming an advocate for Crohn’s, one player at a time


The way that my advocacy life started actually happened by chance This was...

by Erron Maxey October 28

Nurse and patient: Seeing patient care from both sides


As a patient, and as a nurse, the past year has made it extremely...

by Melissa Crawford October 1

Fueling hope and healing through family-centered advocacy after pediatric brain cancer


Despite having spent nearly a decade of my career in the business side of...

by Erica Johansen September 30

Doing more: Patient advocacy and support in a Pandemic


I am very active patient partner both locally and nationally I am a family...

by Desiree Collins Bradley September 29

Cheerleader of Hope


I was living my dream I trained and performed cheerleading, dance and...

by Barby Ingle September 17

Improving Health Care with Patient Voices: A Summary of the #WTFix Virtual Patient Panel


We recently hosted our first-ever #WTFix virtual patient panel – and we...

by Anna Greene August 24

Connecting through community: Building a support system to meet your needs


I remember the day that my life changed forever My parents sat me down at...

by Seth Rotberg May 27

5 actions to take when facing a health crisis


I recently wrote an article for HealthSparq’s #WTFix initiative, “A...

by Emily McIntosh July 31

Deceived but not defeated


I never felt any symptoms I mean, I was tired, but what young 20-something...

by Carly Flumer May 7

Sharing patient perspectives for decades: stroke survivor Lisa Deck on attending the Patient Experience Symposium


I suffered three strokes between ages 21 and 25 My life was turned upside...

by Lisa Deck April 29

A scientific approach to being a patient: asking questions, making decisions and helping others


I am a scientist, currently working on my PhD in biomechanics For a large...

by Emily McIntosh April 26

Building community: One shared experience at a time


I first began exhibiting symptoms of what I now know is Rapid Cycling...

by Maya Northern Augelli January 9