Blog
You Have an Enabled Mind!
There is a lot of turmoil in the world today and it can seem like good...
A Message to Health Plans: End the Tiers
My health insurance has three tiers: the preferred tier, the in-network...
Becoming an advocate for Crohn’s, one player at a time
The way that my advocacy life started actually happened by chance This was...
Nurse and patient: Seeing patient care from both sides
As a patient, and as a nurse, the past year has made it extremely...
Fueling hope and healing through family-centered advocacy after pediatric brain cancer
Despite having spent nearly a decade of my career in the business side of...
Doing more: Patient advocacy and support in a Pandemic
I am very active patient partner both locally and nationally I am a family...
Cheerleader of Hope
I was living my dream I trained and performed cheerleading, dance and...
Improving Health Care with Patient Voices: A Summary of the #WTFix Virtual Patient Panel
We recently hosted our first-ever #WTFix virtual patient panel – and we...
Connecting through community: Building a support system to meet your needs
I remember the day that my life changed forever My parents sat me down at...
5 actions to take when facing a health crisis
I recently wrote an article for HealthSparq’s #WTFix initiative, “A...
Deceived but not defeated
I never felt any symptoms I mean, I was tired, but what young 20-something...
Sharing patient perspectives for decades: stroke survivor Lisa Deck on attending the Patient Experience Symposium
I suffered three strokes between ages 21 and 25 My life was turned upside...